A Mummys View

Telling it like it is

DysNet – Bringing Together the Dysmelia Community

So, many of you who regularly read my blog will know that I am a disabled mummy and was born with hip displacyia or CDH as it was known then), so I have a lower limb abnormality you could say.

I am certainly up for supporting charitable causes and so far in my very small blogging life I have been involved in the #Blogitforbabies Save the Children campaign, the ONE Thrive campaign, I’ve held a Yummy Mummy fundraising event for CLIC Sargent and devised and launched #Blogging4Madeleine in support of finding Madeleine McCann.

I was recently contacted by the lovely Tania Tirraoro who told me about DysNet a new online community to support people with limb differences (otherwise known as Dysmelia) and with having a limb abnormality myself I was only too  happy to help.

The DysNet site went live on Monday 21st May and aims to provide up-to-date information, support and research for people with limb differences throughout the world.

I think this is a great tool, as I remember how my family felt when I was younger and they were coming to terms with my disability. They came across a wonderful charity called STEPS who provided and still continue to provide fabulous support to people with lower limb abnormalities. So, in the current digital age that we live in and with so many people turning to the world wide web for answers to their questions, the launch of a website like DysNet is fantastic in helping provide support to people who either have had Dysmelia for some time, or who are just experiencing it and want to find out more and have that same support that my family had all those years ago.

It is hoped that individuals will contribute to the online knowledge base to share expertise and resources that could benefit others that are in a similar position. By sharing experiences, guidance and advice, lives can be improved and fulfilled, my own experiences are testament to that.

DysNet is also launching an online community called RareConnect. It will be a trusted and monitored environment for everyone involved in Dysmelia to make connections. It will be available in English, French, German, Italian and Spanish, meaning the support can be spread wider, breaking down language barriers and opening up new connections and opportunities.

If you are affected by or want to find out more about Dysmelia then please do visit DysNet

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#Blogging4Madeleine Campaign Update

It’s been two days since the launch of #Blogging4Madeleine and I am overwhelmed by the amazing support we have had for the campaign! We’ve had 43 blog posts in 48 hrs!

There have been some truly inspired and heartfelt posts, some speaking of first hand experience and some opening some very interesting debates.

I would urge you to take the time to read some of them across at the #Blogging4Madeleine link up that Britmums very kindly hosted for us. I will also be sharing some of my favourite via my social media accounts over the coming days.

If you haven’t already please consider joining the #Blogging4Madeleine campaign. We want to spread the word to all four corners of the globe that this little girl, as unfortunately so many others, is still missing and needs to be returned her to her mummy and daddy where she belongs, and who miss her so so much.

Thank you

x

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Help Bring Home Madeleine McCann – Launching #Blogging4Madeleine

Today is Madeleine McCann’s 9th Birthday.

Madeleine, a British youngster, was abducted whilst on holiday in Praia da Luz, Portugal on Thursday 3rd May 2007.

Despite worldwide apparent sightings and information she still hasn’t been found.

Today myself and the lovely Tea&Biscotti are launching #Blogging4Madeleine a campaign that is bringing together bloggers, hopefully in their hundreds, to write posts about Madeleine’s disappearance and help spread the word worldwide that she is still missing and to not give up hope on her and bring her home to her parents where she belongs.

I can only imagine the heartbreak her parents must be going through, not knowing where their little girl is. Having a child myself that I worship and adore I honestly don’t think I could cope. I have been in tears just watching the video appeals on the FindMadeleine official website and this amazing YouTube post made by a lovely campaigner. My daughter means the world to me and to lose her in any way would break my heart, but for her to be taken in the middle of the night and to still, all these years down the line, have no idea what happened, who has her or where she is would just crush me, I don’t know how I would come back from that.

Madeleine was only three years old when she was taken.

She was an innocent little girl enjoying a holiday with her mummy, daddy and her little brother and sister until someone callously snatched her from her bed, taking her away from everything she knew and loved.

Someone out there KNOWS what happened to Madeleine. Someone KNOWS where she is. It’s never to late to come forward with any information.

The Metropolitan Police Force recently released this picture of Madeleine as they think she could look now. They believe Madeleine McCann could still be alive. They have identified 195 potential investigatory leads and are revisiting hundreds of previously uninvestigated calls that were received from psychics and others following her disappearance in a hope that some of the information may corroborate more tangible information already received.

If you see a young girl who looks like this,PLEASE CONTACT:

Your local police force immediately, AND

Operation Grange
0207 321 9251 (in the UK)
+44 207 321 9251 (non-UK)

Operation.Grange@met.pnn.police.uk

OR Crimestoppers in confidence on 0800 555111 or www.crimestoppers-uk.org

Please join our #Blogging4Madeleine campaign and help spread the word, share the images and links and lets bring this little girl home to her family where she belongs.

HOW YOU CAN HELP:

  • If you are a blogger why not write a post of your own, tag others to do the same, include #blogging4madeleine and come back to this page and Tea&Biscotti’s blog to share your post with us. You can also share it at the Britmums link up too
  • The Find Madeleine website has lots of banners, posters and images that you can download and circulate
  • Download the new age-progression poster of Madeleine from the website and display it in prominent places. The posters are available in many different languages so you can also take them with you when going on your holidays.
  • Car stickers, Luggage tags and Prayer cards are also available – To obtain contact the Find Madeline campaign email address with your details- campaign@findmadeleine.com
  • Carry a Madeleine ‘business card’ in your wallet or purse or a photo and the investigation helpline number in your mobile phone. This will allow you to have instant access to a photograph of her and the investigation contact number, should you see a little girl who looks like Madeleine.
  • Social networking sites: If you are a member of ‘Facebook’, ‘Twitter’, ‘Google+’ or other social networking sites, you could share this post or those written by other bloggers, add a Madeleine banner to your site and follow or make the ‘find madeleine’ site your ‘friend’.
  • Donate to Madeleine’s Fund ‘Leaving No Stone Unturned‘ – This can be done via several routes including via the website.
  • Join Support Groups: The ‘Helping To Find Madeleine’ group was set up shortly after Madeleine’s abduction, by caring people wanting to help with the search for Madeleine. Visit www.helpingtofindmadeleine.org

We came up with the idea of #Blogging4Madeleine following reading that it was about to be her 9th birthday and that a new picture of what she may look like now was being released. It breaks my heart to think that her parents still don’t know where she is or what happened. I am writing this post with dozens of other lovely blogger friends and hopefully many more to help keep the search for Madeleine McCann alive. We want to help spread the word and remind people to keep looking and to not give up on Maddie. With the blogging and social media community being a global one together we can help to continue to spread the word to all four corners of the globe.

What will you do to help bring Maddie home?

#Blogging4Madeleine

Happy Birthday sweet Maddie, our thoughts and prayers are with you and we all hope that one day you will be found and returned to your family who miss you so much.

xxx

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